Tuesday, April 29, 2008

STEPS!

GUESS what!!! Anderson JUST took about 10 steps!! YES!!! He is FINALLY starting to take steps again since the cast came off 10 days ago!

What a GREAT day!!!

Thursday, April 24, 2008

Wacky Wednesday

Our Wednesdays are typically "wacky". Every Wednesday...I get everyone ready to start the day (dressed and breakfast). I make 2 lunches (Kaitlyn and Ryan's), snack for Anderson and out the door no later than 7:55 (okay, this is early for us right now.....remember K is not even in Kinder yet!) I take Kaitlyn to school, then Ryan to school, then Anderson has 2 hours of therapy at CHOC. Then, Anderson and I have lunch, back to pick Ryan up from school, then pick Kaitlyn up from school....whew! It is a little busy. Did I forget that Anderson needs to nap sometime in there b/c he just had 2 hours of therapy? ;)

Regardless...we do it every week and every week we make it to all of the places, with shoes on, matching outfits (well, most of the time), and brushed teeth...and most importantly, with a smile.

Well, yesterday was an INCREDIBLE day!! Here are some of the things that Anderson did just YESTERDAY!!!!

1) We dropped Kaitlyn off at school. Kaitlyn's little friend, Avery, LOVES Anderson. She was playing with Anderson while Kaitlyn was putting her stuff away at school. I said to Ryan, "time to go, lets go buddy, say goodbye." Then, the next thing I know...Anderson is WAVING at Avery!! Never has done this b/4!! (Well, actually the day prior, on Tuesday, at ballet...Anderson waved at Emma when she got to ballet w/o me even prompting...that was cool too!!)

2) We drop Ryan off at school. They have a bunny that Anderson ALWAYS wants to see. We visit the bunny, I say, "Okay, Anderson, time to go...say bye to the bunny". And, yes...he WAVED again!

3) I run to the grocery store for my Starbucks. I said to Anderson, "do you want a bagel?" He started smiling, and clapping his hands (I took that as a yes!) After I pd for my Starbucks...we are walking back to the bakery...I say, "Where are the bagels Anderson? Where are they?" He starts looking around....then, he sees them when we got around a corner and he points to them and vocalizes!!

4) We are at CHOC and his cute PT therapist comes to get him. We are talking, she says..."Anderson wave bye bye to mama". And he did it!! WHAT?? He NEVER NEVER does this!!

5) We get home from CHOC, lunch and picking up Ryan...I say to Ryan, "I am going to take Anderson up to night night". With that, Anderson puts his hand on the side of his cheek and tilts his head like he is lying on his hand! WHAT?? NEVER seen this b/4! I could not believe it...I said it again...this time to Anderson..."Anderson, are you going night night?" He tilts his head the other direction with the other hand and does it again~~!!!

I was freaking out! These are ALL firsts for him. I was beyond excited...and so was Char when he got home and I was able to share with him. Anderson was understanding, comprehending and communicating with us in ways he has never done b/4!!!

SUPER exciting WACKY WEDNESDAY!

Monday, April 21, 2008

Sick house

Yes, we are sick again in our house. We can't catch a break right now!!! UGGHHH!! Char and I decided that we are going to take the kiddos in for allergy testing. Not sure what we are going to do about the results at this point, but 1 step at a time....I am so lucky to be a stay at home Mom and be able to take them to the doctor and be with them when they are sick. I think that some of this is allergies and some of this is also just the exposure to all of the kids at school as well...they bring it home and then Anderson is exposed. Hopefully, when Anderson gets to school he will not be as sick...he will have built up his immunity....here is our count from today's trip to our ENT....

Kaitlyn - ear infection and sinus infection
Anderson - ear infection and sinus infection
Mom - bronchitis (I know, crazy...have not had this since my college days!)
Ryan - well...TBD...he seemed okay today, when to school and now seems yucky again. Guess we will be back at the ENT tmr. But, hoping to just call and see if he will call in an RX based on the rest of the family ;)

Kaitlyn is better. She was SCREAMING in pain last night (sunday night!) We almost took her to the ER. (Did I say this on my blog last night, can't remember). Anyway, 2 rounds of meds, and some motrin...she is better!!

Off to sleep and try to get rid of my "Yucky" too!

Sunday, April 20, 2008

Too long

Sorry it has taken me so long to write. Things have been busy......

I will just update a little bit tonight and hopefully more tmr ;)

Kaitlyn - still has her boyfriend, Dylan. I got to meet him, he is CUTE! She gets dressed in the AM and will ask me, "Mommy, do you think that Dylan will like this?"...Oh my! Kaitlyn has been sick with a cold/sinus infection. It started last week and missed a day of school. Seemed like she was getting better....until tonight. She started saying that her ear was hurting her, and hurting her. (Crying and screaming actually). So.....here we come Dr. Cami (our ENT!). Looks like she will not be going to school tmr......sigh.

Ryan - he is doing great. He had the cold/sinus infection earlier last week (started with it actually 1st out of the 3 of them). He is much better. Just same old, cute, funny, sweet Ryan. I know I am missing stories...too tired right now, sorry to think of something.

Anderson - CAST IS OFF!!!! Yes, the cast came off on Thursday. Whew...happy we did not get a 2nd cast put on. He is still "favoring that leg" and his gait is "off". But, talked to Neil (our friend who is an orth0)....he said all of that is very normal and will be for several weeks. ....sigh again.....Anderson continues to do more and more things that surprise us. The other day I asked Anderson if he wanted to help me get the dog outside, and he crawled over to the outside door. Great!! He understood me. We have seen him understand new words....where is the giraffe (finds it), where is your bagel (finds it), where is daddy (looks at him), etc. GOOD GOOD GOOD!! One night, we asked Anderson....want to take a tubby...he crawls up to the bathroom ;) LOVE IT!! Plus, heard more "mmmmmm" sounds this weekend!!

We spent the day at Disney with Kaitlyn and Ryan today. We got a sitter for Anderson. He has the "cold/sinus infection thing" and he only tolerates the "lines" at Disney for "so long". We told Kaitlyn and Ryan we would take them one day and spend the whole day. We got there at 9 and left at 5. It was a blast! We rode 8 or 9 rides. It was a ton of fun for all of us!

I hope to update more later tmr or Tuesday.

Sorry it has been so long!!!! I will try to be better!!
Good night!
Liz

Thursday, April 3, 2008

New what???

What an INCREDIBLE DAY!!!

Well, 1st Kaitlyn announced to me she has a boyfriend, YEP, that is right a boyfriend...named Dylan. He is in the other Pre-K class, they met on Wednesday....they way she starts talking when she talks about him is hilarious! OMG!!! PRE-K!!!! Good thing she told me about it and not Charlie, I am not sure Charlie could have handled it! Ha, ha, ha!

On Monday, Ryan was officially VIP at school for the week. VERY fun! He got to bring in a snack...which he choose cookies and apple juice. We made a collage of him doing his favorite things....riding his bike, gymnastics, dressed up as Superman, playing soccer, on a roller coaster, going down the jumpy house slide, etc. CUTE. He also got to pick his favorite book to share with the class. Ryan was chanting at the top of this lungs as we pulled into school.....here comes the VIP, here comes the VIP! LOVED IT! He was so very proud, and so was I!

Today...Anderson had an amazing day at his new speech therapy. I will try to make a long story short. The name of the standarized test done in the past for speech was the Rosetti. Since the old speech therapist did the Rosetti early February for us to take to Dr. Frim....the new speech therapist could not repeat. You are only allowed to administer the same test every 6 months. But, CHOC wanted to do their own evaluation of Anderson. So, they decided to do the Bayley. They started it today. Anderson's speech therapist, Amanda, said that the Bayley test is the BEST OF THE BEST...the test that every facility strives to use b/c it is the most accurate and the most respected. So, here are the results:

Feb 2008 Rosetti - ***this test was also administered in July 2007....the results were the same! Anderson had NO change in 7 months on this test....

Expressive Language: 0-3 months of age
Receptive Language: 3-6 months of age
Cognition : 9-12 months of age

April 3rd 2008 Bayley - 1 MONTH POST-OP to the day!!!

Expressive Language: 5-6 months of age
Receptive Language: 10 months of age
Cognition: 14 months of age

Amanda told me she typically does not give results prior to reviewing the test. However, she saw how "bad" the Rosetti results were and she wanted to relieve me of any stress and brighten my day, so she started to give me preliminary results. These are not perfect yet, as she is not 100% completed with the test, but these are the initial results. I told her I would understand if these results had to go down after she was complete and she told me that she would NOT do that, that is why she waits, and if anything, the results would get better when it was complete!! YAHOO!! Charlie and I were over the moon excited with these results!! SO SO SO happy!

We are so blessed, Amanda is Anderson's overall therapist, and Sheila is an assistant that will be working with him on a week to week basis...Amanda overseeing it. They are BOTH GREAT!!!! I feel so lucky and happy the way this is working out for us.

GOOD news to report tonight....
Off to bed, my eyes are heeeavvvyyy....
XOXO
Liz